Olivier Goy has a passion for photography and, with his wife Virginie, founded the Photo4food foundation (housed at the Institut de France) with the purpose of combating poverty in France through photography.
In December 2020, Olivier was diagnosed with amyotrophic lateral sclerosis (ALS) also known as Lou Gehrig’s disease. This is a fatal orphan neurodegenerative disease that results in progressive paralysis of the muscles involved in voluntary motor function. It also affects phonation and swallowing. However, patients are left with full intellectual capacity.
Aged 47, he decided to take on this battle in the full light of day. He spoke about it for the first time in a long podcast (Generation Do It Yourself - Matthieu Stefani) where for 90 minutes he exposed his determination to fight the disease and live his life to the fullest. The episode having had astonishing twists and turns, he now wants to continue his fight against the disease with the film INVINCIBLE SUMMER, directed by Stéphanie Pillonca. After its cinema release in France in May 2023, the documentary will embark on an international career.
Married, father of 2, he is still an entrepreneur (October, a technology company lending to SMEs). He is a knight in the National Order of Merit and an ambassador for the Paris Brain Institute.